It has been an absolute GREAT four weeks. I had the chance to focus on my boys and not have the added pressures of work. As Bryce gets to now start his summer, I have to return to work. Back to the real world some would say, as if we haven't been in it all along. Bryce will start his next session in September. He has a few appointments scheduled and some in-home therapy... other than that. He has a few months of just being a kid.
10 July 2011
School's Out For Summer
Bryce has now completed his second session at the Conductive Learning Center of Greater Cincinnati. We are amazed at the results from this session. The biggest change, has been the way that he uses his hands more and more by keeping his hands open and not as fisted. He is able to stand flat footed (instead of on his toes)... this is probably a combination of school and the Botox he got a few weeks ago. Bryce has become more aware of his mouth, especially his tongue. By the end of the second week, Bryce and I really started working as a team. Many of the tasks that we found difficult to do, we were doing (with little to NO assistance from the conductor). I was proud of both of us!
05 July 2011
Fourth of July Celebrations
We had a very busy holiday weekend, but we all had a blast. Swimming, picnics, s'mores and of course FIREWORKS. We are all exhausted and still trying to catch up on rest. We are at the start of the last week of Bryce's CLCGC session, which means very close to the end of my leave from work. It has been so great to be able to focus on the boys, especially Bryce's therapies/appointments. I will be heartbroken next week when I go back to the other part of my "real world."
Tomorrow Bryce will be starring in his first ever Video Debut. We have been asked to participate in a research video for Cincinnati Children's Hospital. I have been asked other times but turned them down. Bryce was chosen because he met all requirements.... 2 year old, born at least 28 weeks or earlier, low birth weight and has to have CP. No doubt he can check all of those off, but what might just surprise these researchers is that he is TOTALLY blowing the theory the medical professionals had. He is far from the very low quality of life and basically vegetative state that everyone warned us he would be. I wouldn't let this video pass us by, of course we will do it!
Never lose HOPE!
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