6 weeks post op

The world of physical therapy is far from new to us. Bryce started therapy when he was just 6 months old and barely 7 pounds. In the four years of his life he learned ways of moving his arms and legs. Due to his high muscle tone his movements were not functional. Since having SDR Bryce has had to learn ways to break the "patterning" that he became accustomed to. This is still an every day battle for him. Bryce is still weak in many ways but we are starting to see that he is also getting stronger each day. 

Since having SDR just 6 weeks ago Bryce has completed 80 hours of PT outside of what we do at home. He has learned the route to each place we go... At first he would cry when we pulled in the parking lot... Now he cries as we get off the exit. Funny he has such great sense of direction when his Mommy has absolutely none. The tears are hard but he always ends up enjoying most of each session. He does hard work with great determination that has been so inspiring to see. 

Bryce has been doing traditional PT, conductive education, spider therapy and aquatics. In October we will add hippo therapy (horseback riding) to the mix. Sometimes I feel like we are spending all of our time on the road... And we kind of are.

This week we have been getting great reports- Bryce is getting much stronger in his legs and his head control is improving. He has been doing awesome with potty training too! His therapist was also excited to see him with more controlled and purposeful movements. Bryce is also nonverbal but his sounds have been changing and he tries so much harder to talk. 

We have a long road ahead but I can't wait to see where that road will lead Bryce - and us! So exciting that although slow we get to see all of these improvements happen right before our eyes! In the coming weeks we keep up and increase the PT, get casted for new night splints and day braces and yet another sleep study. We will also be adding in preschool! Did I mention how tired we all are? 

A Must See This Summer

Two nights ago we were outside enjoying the weather and a very unexpected moment occurred. Funny how when we start letting little negative thoughts enter our mind - Bryce reminds us that HE IS IN CONTROL. The video speaks for itself!

http://youtu.be/-jjXBJc1o9I

I just knew...

I had prepared for a very tough summer. Knowing Bryce would have surgery and afterward would be in so much pain. Then all the therapy... Yeah that would be tough too. He hates therapy so that wouldn't be fun at all. We knew that we wouldn't get to do much this summer. We were prepared to not have much fun.

I have to admit- I had it so wrong.... And sometimes I love being wrong! This summer has been awesome, amazing, life changing. It hasn't been all fun and games but close to it! It is one that I will never ever forget!