Sorry it has been a while since we have  been able to update everyone. So much has happened in the past couple of weeks. Cohen has been adjusting to life at home, it seemed at first that he wasn't sure about his new life outside of the hospital. It took a few nights for him to settle in, but he is doing great sleeping for four to five hours  through the night. It has been so nice to have him home, he has finally made us feel like parents. He is up to 8.11 lbs and is close to the growth curve of a regular newborn. Cohen even gets to go back to visit his brother any day. We try not to make too much of a habit out of it.... We don't want to risk getting either of them sick or putting too much on Cohen, but it is hard not to take him so that we can all be together.

Bryce has went through a lot of changes since we last posted an update. His infection that was found in his CSF fluid did not clear, so another operation was formed to externalize the shunt. It was hard for me to think about having a tube come out of his head draining fluid. I pictured something very graphic that you would see in a horror film. Once I was able to see him after the  surgery it wasn't near what I thought it would be. The shunt has to be external until they have fully treated the infection. At that time, the shunt will be replaced and we will hope and pray that his surgeries will be over. This makes surgery number four and number five will soon be on its way. Once the next surgery is over and Bryce has recovered, we will just need to work on feedings  with him... Then we will finally be able to go home. He has  made it up to 6 lbs.... 

Thanks to everyone who continues to follow the boys.... We appreciate all the love and support.

Home Sweet Home

Finally some good news.... COHEN IS HOME!

We were able to bring Cohen home two days ago (August 6th). It felt so good taking him off the monitors and being able to freely move about the room with him. It was very bittersweet, we felt terrible leaving Bryce behind. It made their room seem so lonely. We keep waiting for the day that he will be coming home with us.

The first night it seemed that Cohen didn't care for his new bed. He didn't fall asleep for us until 5am. The nurses had told us what a great sleeper he was at night, we started thinking that maybe they had been lying. The second night was much better, he only got us up a couple of times. He seems to be enjoying home. Our dog Tax has been very interested in this new little thing we brought home. He wants to be right next to Cohen no matter where he is.

Bryce has been doing relatively well. He is still being treated for the infection caused by his first shunt. He is now taking over 30 percent of his feeds through a bottle. It has been so exciting to watch this little guy take more and more by mouth. He is fighting his way home. Bryce will have an MRI on Monday to take a more detailed look at his brain and to make sure the new shunt is operating effectively. He seems to miss his brother, but we are able to take Cohen back with us when we need or want to.

It is hard having one home and not the other, but we are truly closer than what we were before. They are now 40 weeks gestation and 12 weeks old!!!

Thank you to all who have been and continue to support our family.