Sorry it has been a while since we have been able to update everyone. So much has happened in the past couple of weeks. Cohen has been adjusting to life at home, it seemed at first that he wasn't sure about his new life outside of the hospital. It took a few nights for him to settle in, but he is doing great sleeping for four to five hours through the night. It has been so nice to have him home, he has finally made us feel like parents. He is up to 8.11 lbs and is close to the growth curve of a regular newborn. Cohen even gets to go back to visit his brother any day. We try not to make too much of a habit out of it.... We don't want to risk getting either of them sick or putting too much on Cohen, but it is hard not to take him so that we can all be together.
Bryce has went through a lot of changes since we last posted an update. His infection that was found in his CSF fluid did not clear, so another operation was formed to externalize the shunt. It was hard for me to think about having a tube come out of his head draining fluid. I pictured something very graphic that you would see in a horror film. Once I was able to see him after the surgery it wasn't near what I thought it would be. The shunt has to be external until they have fully treated the infection. At that time, the shunt will be replaced and we will hope and pray that his surgeries will be over. This makes surgery number four and number five will soon be on its way. Once the next surgery is over and Bryce has recovered, we will just need to work on feedings with him... Then we will finally be able to go home. He has made it up to 6 lbs....
Thanks to everyone who continues to follow the boys.... We appreciate all the love and support.
Great pics!! I am so happy to hear that things are going good. They have grown so much!! :) You both are doing wonderul as parents!! They appreciate you more than you know!!!
ReplyDeleteThanks for taking the time to update!! :)
Love you guys,
Mandy, Nathan, and Lucy
Guys, it's heartwarming to see the pictures and hear about the progress made by the boys. I'm thinking of you.
ReplyDeleteJohn L.
OMG, the pictures are adorable! Casey you look terrific! Don't feel left out Matt you do to ;)! No reason to apologize for taking so long for an update, you have your hands full. I am so happy to hear things are going so well with cohen, those 4-5 hours are great sleep aren't they! Bryce will be home in no time, he seems like a darn good fighter. Tell Cohen to watch out he may be bigger but Bryce is stronger! We may be out soon would love to see you, I will keep you posted as to when.
ReplyDeleteTom, April, and Jacob.
Matt and Casey, the pictures of the family are beautiful. I can't believe how big they both are getting. I want to say that the strength of your family is absolutely amazing and inspires me everyday to better appriciate my own. I don't believe I have ever met such devoted parents in my life. I also have to say that your boys are utterly amazing too. When I saw you and your boys in the hospital a few weeks ago, I left that day reminded of how wonderful it is to be a parent. We all continue to pray for each one of you every day. Give both the boys a kiss...
ReplyDeleteKatrina, Michael, Morgan, and Jake