I am scared. I am excited. I am about any emotion that you could possibly feel.
I am so beyond excited that Bryce will be given a whole new opportunity and I know that this WILL change his future. Bryce has always been so determined and does so great with therapy but his spasticity always stood in his way. I KNOW that this will open so many doors for him.
I am scared because it is a major surgery. In Bryce's life he has had 13 surgeries: 11 shunt related surgeries, bilateral hernia repair and eye surgery on both eyes. For each and everyone of these, some planned some emergency, I cried. There is just something about walking your child to those OR doors - walking away without them- and putting full trust into the hands of the surgeons and OR staff. Sitting in surgery waiting is also something I am very familiar with. I have gained a lot of patience over the years, but there is nothing worse than waiting in that room. You sit and wait for the updates, most times it feels like forever before you hear anything.
I will never forget his first shunt surgery - we were called to the consultation room where the neurosurgeon said everything went well and they were "cleaning him up" and we would see him in recovery. So we went back out to the waiting room and waited and waited.... Finally we were called back to the consultation room again. The surgeon explained that while they were removing the sterile dressing (which is sticky like tape) it ripped through Bryce's skin. It was terrible - I wasn't prepared for what I saw. Bryce literally had layers of skin ripped from his head, exposing his shunt and within a week would become infected. It was like a domino effect. That one surgery led to 10 more....
So now we wait for #14. One thing that I do know for a fact is -- if anyone can do this BRYCE CAN!
We Fight For Him - He Fights For Us!
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