Cohen
Bryce
A lot has happened over the past few days. Thursday we were told that Bryce would be having surgery on Friday morning. That news came with mixed emotions, we wanted something done to help Bryce and at the same time it was very scary. Our little baby, just over 2 pounds, would be having brain surgery. A reservoir was placed under a thin layer of skin on Bryce's head. This would help the doctors drain fluid from his brain as needed. The surgery was a success and improvements are expected. The doctors remain hopeful that Bryce will be able to get back to growing. His feeds were restarted and he has had few heart-rate drops. He has been very alert and still smiles after all he has been through. He is simply amazing.
Cohen is also doing great. He has been able to go from the enclosed bed to a "big boy bed" (an open crib). He continues to maintain his body temperature which is another big step. This is also exciting for Mom and Dad because we can hold him any time we want. We aren't limited to once a day. Cohen has really started to develop a little personality. He knows just when to cry and just when to smile. He has the widest, most curious eyes.
We are still fighting the battle and trying to get the boys together. So far our insurance company has denied our request to have Cohen transported to Children's so that he is with his brother. The doctors at Good Sam have been trying to help us, but so far with no success. We can appeal the request but they have 30 days to look into the request. They will not expedite the appeal since it isn't "medically necessary."
For now, we continue going from hospital to hospital hoping that we don't miss anything with the boys. We appreciate all the love and support from everyone.
Hang in there guys! Anything we can do to help, know we will. Nurse Heather :)
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