Miracles Can Happen: It is all becoming so real....

05 July 2013

It is all becoming so real....

It is hard to believe that we are days away from Bryce's SDR. After a year of research and consideration, consulting with Dr. Park on whether Bryce was a candidate or not and then battling insurance.... we have made it. Of course, right now we are filled with so many different emotions... We are happy, excited, scared and nervous. We know that this is not going to be easy but we also know that it will be worth it. This is just the beginning of Bryce's new future!

We will hit the road Sunday morning bound for St. Louis. Monday we will meet with Dr. Park and his team. It really seems so surreal. I received the phone call today from St. Louis...

Bryce's surgery time will be 11AM on Tuesday, July 9th.

Please please, whether you pray, cross fingers or just send positive energy - whatever it is you do... Can you do it for Bryce next week?

For two days after the surgery Bryce will need to lay flat on his back. I am sure this isn't going to be a very fun time for him and very hard on us. He likes to be cuddled and held when he is in pain or overwhelmed. On day 3 the team will get Bryce up to start PT... many have said this is the worse day. I am going to do my best at keeping everyone updated while we are away. Please keep him in your thoughts and prayers over the next few weeks.

You might keep brother in those prayers as well. The boys have never done very good without one another. Cohen gets very concerned for Bryce and doesn't like when they aren't together. These 5 days apart might be a little hard on both of them. Cohen will be able to visit some but I am sure it will be scary for him too.

1 comment:

UnknownJuly 05, 2013
Just found your blog from "Love That Max". I live in the St. Louis metro area. I have seen some of what Dr. Park has done on a TV special about Children's Hospital. My son (10, autism, non-verbal, cleft lip, cleft palate) has several specialists at Children's. The folks in the same day surgery area are the best! And Luke always loves to watch the aquarium in the waiting room. I will keep you in my thoughts and prayers!
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From the beginning...

On January 5, 2009 we found out we were having twins!!! We were so excited and never dreamed that we would have any problems getting them here. All we could think about was how special it would be to bring two little ones into this world at one time.

It was a few weeks later that we found out there were issues with the pregnancy. It appeared that the twins had Twin to Twin Transfusion Syndrome (TTTS), but after several tests it was found that there was a growth discordance in the twins. Baby A (Cohen) had more placental share that Baby B (Bryce). After finding this out I was put on full bed rest at home. We had ultrasounds every other week to check the babies growth. It was a constant worry whether the babies would make it.

At 20 weeks I would be admitted into Good Sam Hospital with pre-term labor complications. Those complications would turn into cervical length problems and from there a one night stay turned into 54 days of trying not to go absolutely insane. Each week we would have a new scare. I became very ill with blood poisoning and there was a fear that the infection got to the babies, luckily it did not. I also had daily contractions, some days more than others and began dialating. I developed gestational diabetes, only after passing the glucose test a week before.

At 28 weeks (and one day) real labor set in and I gave birth to two very small but very beautiful boys - Cohen Matthew and Bryce Anthony. This is their story...