Miracles Can Happen: Post Surgery Day 1

10 July 2013

Post Surgery Day 1

Bryce has had a difficult time with pain management. I stayed with him last night and I know neither of us slept for an hour. Every 30 minutes he was receiving a bolus of pain meds. This would work for a few minutes but his muscle spasms kept him uncomfortable most of the time. He was in the PICU until late today and then moved to the regular floor. Tonight he is doing much better. It seems as if they have this cocktail of narcotics just right/ finally!

Bryce is sharing a room with another kiddo that had SDR the same day as Bryce. Fortunately for all of us the room is huge and much more calming. Bryce is doing great with having to lay flat and did eat for us - even though it was very little.

Hoping tomorrow is even better- we all need rest. Daddy is staying tonight so I am getting some time with Cohen. His MawMaws have been doing an excellent job of entertaining him.

Friday will be a big day for Bryce. His catheters will be removed and he will have to get out of bed and start moving around. He will have two PT sessions- one in the morning and one in the afternoon. They will also train Matt and I on how to handle Bryce meaning positioning him and picking him up.

Long road awaits all of us but each day he progresses in recovery. Hoping though these days start moving a bit faster. Thanks to everyone for the continued prayers and support. Many have asked for Bryce's room info. His room is in the 12th floor and room number is 10A. Off to try and get some rest.

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From the beginning...

On January 5, 2009 we found out we were having twins!!! We were so excited and never dreamed that we would have any problems getting them here. All we could think about was how special it would be to bring two little ones into this world at one time.

It was a few weeks later that we found out there were issues with the pregnancy. It appeared that the twins had Twin to Twin Transfusion Syndrome (TTTS), but after several tests it was found that there was a growth discordance in the twins. Baby A (Cohen) had more placental share that Baby B (Bryce). After finding this out I was put on full bed rest at home. We had ultrasounds every other week to check the babies growth. It was a constant worry whether the babies would make it.

At 20 weeks I would be admitted into Good Sam Hospital with pre-term labor complications. Those complications would turn into cervical length problems and from there a one night stay turned into 54 days of trying not to go absolutely insane. Each week we would have a new scare. I became very ill with blood poisoning and there was a fear that the infection got to the babies, luckily it did not. I also had daily contractions, some days more than others and began dialating. I developed gestational diabetes, only after passing the glucose test a week before.

At 28 weeks (and one day) real labor set in and I gave birth to two very small but very beautiful boys - Cohen Matthew and Bryce Anthony. This is their story...